Showing posts with label Adrienne Asch. Show all posts
Showing posts with label Adrienne Asch. Show all posts

Sunday, 29 December 2013

This Was Philosophical Comment 2013

Time once again to make a bit of a summary for this blog during a year which will soon end – last year's summary is here.

The trend mentioned last year of a seemingly (after my recovery from illness) continuously increasing popularity (in terms of reads) seems this year to have initially continued and then leveled out somewhat after last year's extremely positive surge. The monthly figures have in 2013 been residing rather steadily between over 6 000 and over 9 000 reads, with 9 549 as the top figure for September and today the total number of reads ever passed 188 000. There will, however, be a notable dip in reads for this the last month of the year, as with a few days left the figure is still only at slightly more than 3 600 (click the image to see a larger version).



I have also noticed a tendency of a less secured minimum number of monthly hits during autumn, although I've had a few posts that have attracted more than the average attention to make for good monthly figures in the end. A main explanatory factor for this development, as it seems, is that Blogger has chosen to move its Blogs of Note page, where Philosophical Comment has been featured and thus widely displayed at the top since August 2012, into archive mode, favouring instead the increasing integration with the Google+ platform and its blog function. During the year, I've also – albeit with some reluctance due to my dislike of the increasing dominance of Google and what that means to make for a less dynamically evolving internet – finally chosen to integrate Philosophical Comment with Google+, although much remains to be done on that front to have impact on read numbers. I have to say, I do prefer to have the quality and attraction of posts to determine readership over strategic marketing tricks like these. But I can't deny the world around me, so here we are, we'll see next year if I managed to conjure the energy to maximize exposure in this new environment, or found the time and inspiration to post more regularly.

So, over to the posts themselves. This is the all time high statistics of the blog so far (click the image to see a larger version):

Compared to last year, some significant changes have occurred. First, after several years at the top, the WikiLeaks piece is now third, with my musings over various less impressive sides of the new online landscape of academic publishing is at the top. There are still a few posts connecting to my comments on the many strange moves connecting the the management of the American Journal of Bioethics up there, but as that affair is now a thing of the past, I expect these to gradually be pushed down and eventually off the list by fresher and more relevant material. A few posts that made last year's all time high list have been so pushed off, to be replaced this year by a rather sarcastic piece commenting on a scandalous and eventually officially declared unlawful police registry of roma people in south Sweden, a lament over my academic colleague Adrienne Ash, who sadly passed away this year, a brief pointer to a post by my colleague Udo Schuklenk on his Ethx Blog regarding how to reason around the idea of a military intervention in Syria and, finally, a cross post and referral to a nicely indexed eminent series of posts on moral responsibility, free will and such matters by John Danaher on his Philosophical Disquisitions blog. Not that John really needs the assistance, but I'm nevertheless happy to have been able to thus helped a few people find their way to one of the better philosophy blogs around. Off the list fell, most notably, my comment on how to assess the possible criminal insanity of Norwegian mass murderer Anders Behring Breivik. It may also be noted that while last year it took about 650 reads to make the list, a post this year needs to get above 840, another indication that the leveling out of reads numbers mentioned above has more to do with a less stable minimum than decreased numbers of the top hits of this blog.

Finally, as tradition dictates, a look at the geographic source of the total readership (click the image to see a larger version):


The USA readership is increasing its dominance further, and in all the main reader of Philosophical Comment continues to be anglophone or European, although China has this year made the top ten country of reader list. The full span of the geographic home of readers, however, is better displayed by this image from the ClustrMap function attached to this blog (where larger red markings indicate a larger concentrated number of unique readers of the blog – click the image to see a larger version):


This function displays statistics starting later than Blogger's own, and also counts only unique hits on the entire site (thus not number of readers of individual posts or number of reads). As you can see, Philosophical Comment has a notable readership also in South America, Asia and, albeit still weaker, throughout Africa. Go here to inspect the numerical relations in more detail!

So, that's it. As usual, I wish to thank all you people who read Philosophical Comment, who follow the blog in the various ways available, who comment on the posts, like them on Facebook and other places, +-click, tweet, cross-post and refer to them in other ways. A happy new year and a very best 2014 to you all!



Tuesday, 19 November 2013

R.I.P. Adrienne Asch – Bioethicist, Philosopher and Disability Ethics Pioneer

Today, I'm reached by the sad news that Adrienne Asch – a pivotal figure in bioethics, particularly known for her important contributions to the understanding of disability-based perspectives on bioethics, not least  regarding prenatal and other sorts of such reproductive genetic testing this world doesn't seem to ever get enough of – passed away this morning after having suffered bad cancer for some time.



Confirmation of this last news is here, and the death notice has been traveling around Twitter and Facebook today, e.g., via my trusted Canadian colleague Udo Schuklenk, originating apparently from the account of the US National Federation of the Blind (where Adrienne was a prominent spokesperson):


Addendum 2013-11-20: the day after, Yeshiva University has now officially posted an in memoriam.

The NFB also provides a link to this recent address that Adrienne gave at their convention this summer. It tells the tale of her way into bioethics and philosophy from human rights activist work, explains why the disability perspective is so important to bioethics, and why bioethics is so important to the disability movement, and ends by some pretty hard to chew food for thought for bioethicists, disabled people as well as anyone. Information about her writings and other accomplishments can be sampled via her webpage at Yeshiva University, where she held three parallel chaired professorships and one directorship. But don't take my word on her qualities as a scholar for it, here's a video piece where you can watch her in action talking on her special topic and judge for yourself:



My own contact with Adrienne came via her work on the disability based criticism of prenatal (PNT) and eventually preimplantation genetic testing (PGD), which still holds up as the most eloquently put, stringently made and thought-through devised version of that important critique, which she nevertheless continued to develop (she had a couple of pieces in the American Journal of Bioethics last year). I had myself been barely sniffing some of what Adrienne herself had the full grip on in my work on PNT and PGD in the 1990's, but when I came to writing my first encyclopedia piece om PGD a few years later, I was lucky and awed to discover it all so much better told by Adrienne and since then, her work has been my main reference on that topic whenever I need to provide one. Many years later, as part of a European Commission sponsored project on access to higher education for disabled people and charged with arranging a workshop on relevant disability-related research, Adrienne's name was the first one to come to my mind as speaker – and to my astonishment and joy she said yes. This was not so long time back, so this is how I remember her, as in the picture above: working! Because that she did and contributed everything I could have ever wished for, including cracking a joke when it was best needed. There were plans made then that we never got around to finishing (or even initiating), but she nevertheless honoured me by referencing my PNT work, and we shared space in this book, which came about thanks to Daniela Cutas, who worked with me in this project and was introduced to Adrienne at that same workshop.

Also, used to getting around as a blind person in New York City, when we asked before she came to that workshop if she needed any special assistance, she declined, albeit finding out that this thing with the cobblestones and the trams of Gothenburg and all made it slightly less manageable than maybe she was used to or had expected. Did she intentionally show anything of that? Never! I sensed then the divide of experience between us that probably made an ocean of difference in our angle of approach into our respective work – as much as we reached conclusions of close proximity. The divide between one who in virtue of physiological constitution has always enjoyed the default upper societal hand and the one who has always encountered a basic tweaking the other way around. In any case, this is my own personal connection to and remembrance of Adrienne; hardworking, insightful, generous, profound, funny and proud.

Friday, 23 November 2012

New book chapter available open access: The Best Interest of Children and the Basis of Family Policy: The issue of reproductive caring units

As some of you may recall, a little while ago, I flagged a forthcoming book called Families: Beyond the Nuclear Ideal (edited by daniela Cutas and Sarah Chan and published by Bloomsbury Academic in its Science, Ethics and Society series), where I have a chapter, together with my colleague Thomas Hartvigsson. What I was perhaps not entirely clear about is that, in fact, this chapter and – indeed! – the rest of the book is avaliable open access for reading and non-commercial sharing under a Creative Commons lisence, while the book can also be purchased as both hardcopy and e-book in the regular fashion. To me, a rather clever solution for trying to combine the commercial requirements of running a publishing business and still satisfy the very sound and strong arguments for having all sort of research material and academic output freely available for anyone.

Our chapter is called "The Best Interest of Children and the Basis of Family Policy: The issue of reproductive caring units" and deals with an issue that we introduce, thus:


The notion of the best interest of children figures prominently in family and reproductive policy discussions and there is a considerable body of empirical research attempting to connect the interests of children to how families and society interact. Most of this research regards the effects of societal responses to perceived problems in families, thus underlying policy on interventions such as adoption, foster care and temporary assumption of custodianship, but also support structures that help families cope with various challenges. However, reference to the best interest of children can also be applied to a more basic issue in family policy, namely that of what is to be considered a family in the first place. This issue does not raise any questions regarding the proper conditions for when society should intervene in or change the family context of a child. Rather, it is about what social configurations should be recognized as a potentially fitting context for children to enter into and (if all goes well) eventually develop into adulthood within. Any social configuration so recognized constitutes what we will call a reproductive caring unit (RCU). An RCU is a social configuration such that society's default institutional arrangements allow it to have (by sexual and artificial reproduction, adoption, and combinations of these), care for and/or guard children – the approved RCUs thereby being the basic ‘menu’ of what families with children there may be in society. Opinions on what should be allowed to be an RCU will frame any further discussion of the questions already mentioned, but also policies having further implications for, for example, the practices of adoption and reproductive technology, as well as regulation of custody in the event of separation or parental disagreement.
There is a communicative problem involved in talking about this issue in terms of the word ‘family’, however. Due to a combination of biological necessities, socio-economic and developmental circumstances, prejudice and custom, people around the world tend to associate this term with the presence of romantic or sexual relationships (between adults) and/or genetic links (between adults and children). However, the question indicated above does not necessarily imply such things to be in place in the case of a legitimate RCU. What should be awarded the standing of a family in this sense, then, may be something that many people find strange to call a family. At the same time, if you ask the question whether a single mother and her adopted child, or four adult siblings living together and caring for a foster child could constitute fitting social arrangements for children to enter and develop within, people would not (we presume) rule out this question as empty just because the word ‘family’ seems odd to apply to them. Rather, we suggest, social configurations within which children are raised are called ‘families’ as we tend to view them as legitimate RCUs. Thus, to the extent that there are reasons to allow RCUs not involving the ingredients of romantic/sexual relations or genetic linkage, this will be a reason to change linguistic practice.
The question we want to address, then, is about what is implied by arguments in terms of the best interest of children for the issue of what should be allowed to be a family in the sense of an RCU. This is a question not about particular cases, but about general institutional arrangements. Society needs policies as to what RCUs to allow and within these frames, any single initially legitimate RCU may be found unfitting for serving this purpose, just as in the case with dysfunctional ‘nuclear families’. Arguments about what is in the best interest of the concerned children in such cases can (and should) be brought to bear on this issue. However, as will be seen, these arguments involve quite different considerations compared to when assessments in terms of the best interest of children are applied to the issue of RCUs.

If you feel tempted by this, please just click on the chapter link, and read it in its entirety, as well as the other contributions to this book, by authors such as Adrienne Asch, David Gurnham, Paul D. Hastings, Kerry Lynn Macintosh, Julie McCandless, Melinda Roberts, Joanna E. Scheib, Mary Lyndon Shanley, Naura Irene Strassberg, and several others.

And if you like that, please consider buying the book, or at least liking its Facebook page, or in other ways contributing to spreading awareness of its availability. Thank you!