Showing posts with label prenatal diagnosis. Show all posts
Showing posts with label prenatal diagnosis. Show all posts

Thursday, 13 October 2016

New article on prenatal screening online


 Yesterday I received word that the American Journal of Bioethics has accepted a so-called open peer commentary by myself on a coming so-called target-article that presents a seemingly drastic proposal regarding the ethics and policy of prenatal screening using non-invasive sample techniques and so-called whole genome sequencing technology for analysis. I am partly in sharp disagreement with this proposal, partly in full agreement, and rather critical of how the authors of the proposal have ignored crucial parts of the literature and linked complications. The response where I set out my reasons can now be accessed in its original form, before peer review or editing here and here.

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Friday, 19 December 2014

Special issue of Bioethics: Ethical Implications of New and Future Technical Developments in Prenatal Testing and Screening


One of  my core research fields over the years has been reproductive ethics, especially the ethics of genetic and reproductive technology. In my postdoc period, I published a study on the moral roots of prenatal diagnosis, followed by a number of further explorations of the ethics of reproductive technology, genetic testing and medical screening programmes in general. The last two years, this process has come full circle, due to new revolutionary technical developments regarding prenatal testing and related genetic analysis, and the last year or two, I have been busy presenting and discussing issues related to this several times with Swedish medical professional and medical ethical organisations and actors. In the spring of 2013, I was invited to present my views on this topic at a specially convened international symposium at the Brocher Foundation in Geneva, Switzerland. Out of that event now comes a full special issue on the ethical implications of new and future technical developments in prenatal testing and screening of the journal Bioethics, edited by Wybo Dondorp and Jan van Lith, of Maastricht and Leiden universities, respectively:


http://onlinelibrary.wiley.com/doi/10.1111/bioe.2015.29.issue-1/issuetoc

The content, of course, features a developed version of my talk at the Brocher meeting – A New Ethical Landscape of Prenatal Testing: Individualizing Choice to Serve Autonomy and Promote Public Health: A Radical Proposal – arguing that the technical advances of prenatal testing should herald the beginning of the end of of large societal prenatal screening programmes. But the issue also features a large number of other contributions from leading names in the field, e.g. Angus Clarke, Zuzana Deans, Ainsley Newson, Steve Wilkinson and Guido deWert, and the full table of content reads as follows:

EDITORIAL

PAPERS








Thursday, 28 August 2014

I and Other Philosophers/Bioethicists Criticise Richard Dawkins' Tweets and Statements on Abortion and Down Syndrome

http://www.thedailybeast.com/articles/2014/08/28/richard-dawkins-would-fail-philosophy-101.html


So, I don't think anyone missed Richard Dawkins' recent ill-considered and inconsiderate tweet – in response to a personal, cautious reflection by a follower – that abortion of foetuses with Down Syndrome is morally obligatory, as well as the storm of outraged reactions to that and Dawkins' own retrospective apology and defence of his statements. Some reports are here, here, here and here. And Dawkins' own statement of apology and defence is here.


Now, in an article by Elizabeth Picciuto in The Daily Beast, a number of philosophers/bioethicists, among these myself, comment on Dawkins' statement from an intellectual point of view, as well as his attempt at formulating an intellectual and "logical" (a favourite adjective of Dr. Dawkins in his comments on the criticism) defence of it. Spoiler: it's not worth the paper it's written on and, in particular, it's peppered with logically invalid inferences.

On a personal note, I would like to add one thing to what's said in the article: Richard Dawkins' actions in this matter are especially peculiar in light of his former standing as Oxford professor of the public understanding of science. What he has done here is to promote widespread misunderstanding of bioethics, moral philosophy, as well as regarding the health science aspects of Down Syndrome and the rationale of liberal abortion legislation and prenatal diagnosis.