Showing posts with label Assisted dying. Show all posts
Showing posts with label Assisted dying. Show all posts

Friday, 1 May 2015

Five Observations About Conscientious Objection in Health Care

This connects a little bit to a post not long ago, by my Canadian bioethics colleague Udo Schuklenk on his Ethx Blog, on the topic of conscientious objection in health care. The reason why I have started to think about this is that my country's rapidly shrinking Christian Democrat party has just elected itself a new leader – Ebba Busch Thor (see image to the left) – and the echo of the affirmative acclamation at the party's national congress had barely silenced before she made her first move to plug the many leaks of voters, members and sympathisers by declaring that health care staff should be given the legal right to conscientiously object to participate in the performance of legal abortion. This follows attempts in two public health care counties earlier this and the last year, initiated by single midwifes backed up by "pro-life" lobby organisations, to have the counties grant them such a legal right. Busch's Thor's move is obviously tagging onto these initiatives in an attempt to stop the flight of fundamentalist Christians from the party and mark a shift from the former party leaders more liberal and secular version of Christian Democrat ideology (whatever that is). At the same time, in both of the cases, the motions on behalf of the midwifes were denied by the county councils, albeit in one of them after some brief shuffling. In addition health care professional organisations (including the union of midwifes) have publicly stood up strongly against this sort of idea (see here, here, here), among these the Delegation for medical ethics of the Swedish Society of Medicine, of which I am an appointed member. More precisely, this delegation dismissed generally the notion of a right to conscientious objection for health care staff, no matter the procedure or background motivation. On top of that, given the very strong support of the liberal-feminist Swedish abortion legislation (in place since 1975 and giving all pregnant women a positive right to have an abortion performed by public health care, at barely no cost, up to the end of the 18th week of gestation, no questions asked), while Busch Thor's move might lure some of the lost fundamentalists back into the Christian Democrat pen, it will probably scare off even more of the more liberal and secular minded of the party's supporters. So far so good.

However, when discussing this issue with people in general and colleagues within both ethics and health care, and both in Sweden and internationally, I have encountered five very common confusions, which I will set out briefly in this post. If you feel yourself attracted to the notion of a legal right to conscientious objection, you may want to consider these before settling on a more precise opinion on the matter.


First, as in the case of Busch Thor's suggestion, there often seems to be an assumption that a legal right to refuse performing professional duties can be reserved for only some such duties and some professions. However, given basic principles of equality before the law, legal security and rule of law, this is an impossibility. I'm here assuming a situation where employers are granted a basic (civil) legal right to direct the content and form of the work supposed to be carried out by employees (as long as it is not illegal through some other statute), something that is the case in all jurisdictions I know of. This basic general principle implies, that if one category of employees are to be granted an exemption from the employee (civil) legal duty to follow employer instructions (or resign or be dismissed), the same exemption will have to hold for all other employees of other employers as well, as long as no special reasons tell otherwise. The same reasoning can be repeated for the sorts of tasks involved in a profession. In effect, if there is to be a legal right to conscientious objection by health care staff, this will by default have to affect all staff and all tasks, and it would moreover be a reason to grant similar rights to other professions. This, then, is the level at which any discussion of legal rights to conscientious objection will have to be conducted. For sure, there may then be arguments advanced to restrict the right to certain areas, but you cannot start the discussion by randomly cherry picking some professional area or task to discuss in isolation. The stand taken by the Delegation for medical ethics referred to above is based on this observation: you cannot just discuss conscientious objection in relation to an isolated health care procedure and profession, you have (at least) to discuss it regarding health care in general, including all procedures and categories of staff.


Second, there seems to be a repeated mistaken perception that if a legal right to conscientious objection is denied, the potential conscientious objectors will automatically be legally forced to perform the tasks to which they conscientiously object. Often this confusion is multi layered as it is cloaked in the form of an accusation of infringing the freedom of religion (by forcing people to act against their own faith). However, this is false in two ways. The fact that an employee doesn't have the legal right to decide what tasks his or her employment are to direct him or her to perform, is perfectly compatible with the fact that an employer exercises its right by finding room for the employee in the organisation where he or she will not be faced with the task to which he or she objects. Such accommodations are continuously and routinely arranged throughout the Swedish health care system, as it is – I presume – in other professional areas and jurisdictions. If that is not practically possible, most professional areas present opportunities of finding alternative employment more fitting to one's conscience. And if that proves difficult, there are a great many other areas to explore on the work market. That is, the conscientiously objecting employee have several alternatives to explore, so he or she is not forced in that way. Moreover, the fact that several of these alternatives may mean that he or she may have to change her work situation (including employer, pay, and so on) is no reason to regard his or her liberty to be restricted, as it is the responsibility of the employee his- or herself to have accepted employment where he or she may have to perform tasks to which he or she conscientiously object. With this falls also the claim that denial of a legal right to conscientious objection infringes religious freedom – the believer is and continues to be free to seek and obtain whatever work he or she chooses and no one has a right to stop that, but that does not imply that anyone has a duty to provide work accommodating anyone else's religious (or other) beliefs.


Third, to be denied a legal right to conscientious objection is perfectly compatible with the claim that it may be morally permissible or even required by a professional to refuse employer instructions – thus washing one's hand off whatever evil deed is being suggested. The particular confusion that this is not the case is very common among health care staff, not least doctors, in my experience. Presented with the issue, they often object that it is a frightening thought that one would have no right to refuse or even sabotage immoral instructions from employers – usually the case of Nazi Germany and recent examples of torture is brought up as examples. This, however, is to confuse two legal issues with each other and, in addition, these two with two (also confused) moral issues. Suppose, first, that your employer orders you to do something that is immoral and also illegal. In this case, you have a right to refuse, as the boundary of the employer's right to direct the content and form of the work has been overstepped – thus, you need no legal right to conscientious objection. Now, change the example, and assume that the immoral thing you are ordered to do is, in fact, legal. In this case, the employer's default right to order you to do this thing will hold, and you will be legally bound to comply (or find alternative solutions as indicated above under confusion no. 2). This, however, is perfectly compatible with the claim that you are morally permitted – indeed required! – to refuse the order, or, as said, even sabotage its execution. That is, you have a moral right to refuse a legal obligation, and this you will continue to have with or without a legal right to conscientious objection. In addition, denying such a legal right is also compatible with the claim that the legal provision of the ordering of the immoral task is morally unjustified, so the fact that you lack a legal right to conscientious objection will not undermine whatever moral reasons there are against the law (legally) obligating you to do it either. At the same time, both these moral reasons are, of course, separate – your reason to refuse the order is a reason for that, but the reason to have the law changed is not necessarily a reason for the former. My impression is that also this distinction is left unnoticed in debates on conscientious objection, and that it is often assumed that if there are moral reasons for changing a law, there is a moral reason to refuse its provisions. This, however, is an elementary fallacy. In any case – lack of a legal right to conscientious objection will not in any way undermine the moral reasons for or against single professional tasks or legal statutes relating to these.


Fourth, the moral right to refuse to do immoral things cannot be equated with a moral right to follow one's conscience. This is otherwise a surprisingly common confusion among religious advocates of the legal right to conscientious objection. What seems to be assumed is that a person's conscience will only tell this person certain things – in particular the moral messages embraced by the advocate of conscientious objection in question. But of course – and who should be more aware this than a devout follower of the Christian faith? – a person's conscience may relay messages from whatever source – spiritual or otherwise. Ergo, there is no moral right to follow one's conscience (and this seems to hold for whatever ethical theory is assumed). It may thus be suggested that many supporters of legal conscientious objection rights have simply confused these, with their perceived moral right to act on the morality they themselves embrace (a perception which may, of course, be mistaken).


Fifth, and finally, if there is a legal right to conscientious objection, this right will thus not be restricted to certain contents of consciences. This simple point seems to be almost always overlooked by conscientious objection advocates, and was made in the recent Swedish debate, by a medical doctor who satirically, in response to Busch Thor's declaration, went public to declare that he would henceforth refuse to treat religious people. Perhaps a bit ham-handed, this provocative move still illustrates one of the most basic problems with the idea of a legal right to conscientious objection: such a right cannot be restricted to any particular conscience. While it may provide a legal right for doctors and nurses honouring their professional ethos to refuse, e.g., participating in torture – should this have been made legal – or the right of those who find that objectionable to refuse participating in legalised assisted dying procedures or abortions, at the other end of the scale it would equally protect the rights of the vile, hateful racists or misogynist to refuse to assist in, e.g., the care of Jews or Roma people or "immigrants", or disabled, or others that such a person's conscience may tell him or her should not be included in public health care services. By implication, we may also imagine a hateful anti-religious doctor, who would be convinced that religious people should be denied privileges extended to others, and this person's right to execute this denial would then be protected by law – as would an imagined Josef Mengele leaving disabled babies to perish and die in the maternity ward where he works. So, while there is an often repeated rhetoric suggesting that a lack of a legal right to conscientious objection will open the door for Nazis and similar horrid figures to reign freely (dealt with above in confusion no. 3), it is in fact the very existence of such a legal right that opens this door – if there is a "Nazi argument" on this topic, it speaks against, not for, legal conscientious objection rights. On a grander scale, this illustrates, of course, that the upshot of a legal right to conscientious objection is nothing less than potential anarchy and arbitrariness – again the very opposite of what is required of the basic principles of the rule of law and legal security.

Luckily, for anyone conscientiously objecting to whatever task included in his or her work description, there are many easy solutions: Talk to your employer about changing role and, if that doesn't help, find a job where the task you object to is not on the menu. But first of all, do not take jobs where there are tasks to which you conscientiously object!

Saturday, 15 February 2014

Legalised Euthanasia for Children Regardless of Age in Belgium: The Actual Law in English

The past few days we have heard the reports of the change made to the Belgian (permissive, but also restrictive) euthanasia law that makes it include children of all ages among those who may lawfully receive medical help to end their lives. For instance here, here, here and here. None, however, have had access to or quoted any actual English translation of the new law. Thanks to my colleague Kristof Van Assche at the Vrije Universiteit Brussel's Faculty of Law and Criminology, I'm now happy to be able provide one for interested readers, with the following disclaimer: This is Kristof's own provisional translation, based on this English version of the original law and his own added translations of the made changes. Kristof posted it in the closed Facebook group for bioethics scholars, Bioethics International, and gave me permission to share it with a wider audience in this way. Here comes screenshots from the original post just referred to:


And here, to make quotation easier, is the text in plain text:
 
Law of 28 May 2002 on Euthanasia, amended by the Law of 13 February 2014 – Consolidated version [changes in brackets]

Chapter II: Conditions and procedure


Section 3

§1. The physician who performs euthanasia commits no criminal offence when he/she has verified that:
- the patient is a legally competent adult, a legally competent emancipated minor, [or a minor with the capacity of discernment] and is conscious at the moment of making the request;
- the request is voluntary, well-considered and repeated, and is not the result of any external pressure;
- the adult or emancipated minor patient is in a medically futile condition of constant and unbearable physical or mental suffering that cannot be alleviated, and that results from a serious and incurable disorder caused by illness or accident;
- [the minor with the capacity of discernment is in a medically futile condition of constant and unbearable physical suffering that cannot be alleviated and that will result in death in the short term, and that results from a serious and incurable disorder caused by illness or accident;]
and when he/she has respected the conditions and procedure as provided in this Act.

§2. Without prejudice to any additional conditions that the physician may wish to attach to his/her intervention, he/she must in advance and in each case:
1) inform the patient about his/her health condition and life expectancy, discuss with the patient his/her request for euthanasia and the possible therapeutic and palliative courses of action and their consequences. Together with the patient, the physician must come the belief that there is no reasonable alternative to the patient’s situation and that the patient’s request is completely voluntary;
2) be certain of the constant physical or mental suffering of the patient and of the durable nature of his/her request. To this end, the physician has several conversations with the patient spread out over a reasonable period of time, taking into account the progress of the condition of the patient;
3) consult another physician about the serious and incurable nature of the disorder and inform him/her about the reasons for this consultation. The consulted physician reviews the medical record, examines the patient and must be certain of the patient’s constant and unbearable physical or mental suffering that cannot be alleviated. He/she drafts a report on his/her findings.
The consulted physician must be independent of the patient as well as of the treating physician and must be competent to give an opinion about the disorder in question. The treating physician informs the patient about the results of this consultation;
4) if there is a nursing team that has regular contact with the patient, discuss the request of the patient with the team or its members;
5) if the patient so desires, discuss the request of the patient with his/her relatives appointed by him/her;
6) ensures that the patient has had the opportunity to discuss his/her request with the persons that he/she wanted to meet;
7) [when the patient is an unemancipated minor, consult, in addition, a child psychiatrist or a psychologist, and inform him about the reasons for this consultation.
The consulted specialist takes note of the medical record, examines the patient, verifies the capacity of discernment of the minor and certifies this in writing.
The treating physician informs the patient and his or her legal representatives of the outcome of this consultation.
At a meeting with the legal representatives of the minor, the treating physician provides them with all the information specified in §2, 1° in and verifies that they agree with the request of the minor patient.]

§3. […]

§4. The request of the patient [and, if the patient is a minor, also the agreement of the legal representatives] have to be put in writing. The document is drawn up, dated and signed by the patient himself/herself. If the patient is not capable of doing this, the document is drawn up by an adult person who is designated by the patient and must not have any material interest in the death of the patient.
This person indicates that the patient is incapable of putting his/her request in writing and indicates the reasons why. In such case the request is drawn up in the presence of the physician and the said person mentions the name of the physician on the document. This document must be annexed to the medical record.
The patient may revoke his/her request at any time, in which case the document is removed from the medical record and returned to the patient.

[§4/1. After the physician has treated the request of the patient, the persons concerned are offered the possibility of psychological assistance.]

My most sincere thanks to Kristof for allowing me to share.