Yea, what he said! These things are all outcomes of ongoing research in the cross-disciplinary project Organizing Person Centred Care in Pediatric Diabetes: Communication, Decision-making, Ethics and Health, where myself and some younger philosophers/ethicists collaborate with psychologists, linguists, care and organisation researchers and medical specialists. The project's original plan can be seen here. We are now a few years in and the last week has been a hectic one of delivery both at the yearly international conference of pediatric and adolescent diabetes specialists, ISPAD 2013, that was held in my town last week, and an ethics seminar at the University of Groningen that I visited this thursday.
Here's what came out:
1) An oral presentation (slides) of the main results so far of our entire project, delivered by one of the senior researchers, Marianne Törner.
2) A poster by my Ph.D. student Thomas Hartvigsson and myself, presenting results from an ongoing analysis of videotaped meetings between doctors, patients and parents on the possible value of assessing decision competence as part of a person centred consultation session. The title is Respecting the Adolescent Diabetes Patient as an Autonomous Person - What Does it Imply? Assessing and Managing Decision Capacity for Care Decisions and Self-care
3) Another poster, this time by my post doc in the project, Anders Herlitz, and myself likewise presenting results from an ongoing analysis of videotaped meetings between doctors, patients and parents, this time in the form of a general claim with regard to how person centred care and shared decision making needs to be adapted to fit patients with weak or vulnerable capacities for responsibility and conditions requiring care to be mostly self-managed. The title is The Moral Psychology of Person Centred Adolescent Diabetes Care: two potentially conflicting ethical dimensions of shared decision making for sustainable self-care
4) An oral presentation (slides) that I gave in Groningen more or less at the same time as Anders presented the one above that develops our argument that standard models of shared decision making and person centredness of care lacks a crucial virtue ethical elelment that needs to be added and that this complicates the ethical assessment of the organisation of such care. The title is the same as above.
Currently me and Anders and Thomas and the rest of the team are working hard on, first, two articles, that we hope to submit shortly, and then another batch of two following up more complications of person centred acre and shared decision making that we have discovered through our video-studies. Stay tuned!